Thursday, February 05, 2004
I am
wicked tired. This new med is taking some time to adjust to. It's better than it was, though. A couple nights this week, I have fallen asleep around 8:30 after I put the kids to bed. I spent most of Sunday asleep while the kids were climbing on me. I can't tell yet if it's going to help or not. I am cycling down now so it will be a couple weeks before we see if I go hamster-manic again. ;oD
I have had a couple of good days at work. Lot's of appreciation and whatnot. I came in this morning and Crazy Woman left a six pack of coke on my desk in a bag with Thanks written on it. I had to bust my butt Friday to get her ready for a day long presentation on Saturday and she seemed to like it. :oD I so don't want to be here today though. I really want to be home getting work done there and sleeping. But we got our new photocopier today so I have to hang around until the sales guy gets here and he can take me through the intro for it. It's a networkable one and I am so psyched. They aren't going to hook up that part yet but hopefully they will soon. That will make my life
SOOO much easier. One of the things I like about this one right off is that it's MUCH smaller than the old dinosaur.
I overslept this morning so when I got to school to drop the kids off Karen (the useless teacher) was there. I didn't talk to her much though. I am so disgusted with her I just can't see myself saying anything nice at this point. I found a wonderful discussion board for Asperger's Support
here. I will probably add a link to the side soon. It was so...affirming to read that board. I need to do that from time to time. Even though I work in an environment where disabilities are discussed and understood everyday, it's just not the same as reading what other parents with other kids who have our same issues go through in a day. I guess we all need that every now and again. When all the teachers and theraptists got together that day, it went pretty much as I dreaded it would. Karen's immediate reaction was "I can't do this". When they were all talking and processing, Candice, the speech therapists actually asked Karen "You
are a DT site, aren't you?" because Karen just kept saying "I can't do this". To which Karen replied "Well yes but I really don't know much about that piece of it".
SHE'S THE BLOODY DT TEACHER FOR CRYING UP A TREE!!!!!!! If she doesn't know much about that piece of it, then get her the heck out of there and get in someone who does!!!!!!! They are TAKING MONEY FROM THE STATE!!! For nothing!!!!! They aren't doing ANYTHING!!!!! And the state apparently DOESN'T CARE!!!!!! I just don't understand that whole thing. How can they just not care? How can they pay money to these people
knowing that the facility isn't doing what they are getting paid for? It just boggles my mind. And frustrates the heck out of me because the one who is suffering for all this apathy and ineptitude is my kid! He is supposed to be getting 3 mornings a week of Developmental Therapy to address his Asperger's issues and he isn't. It's wasted time for him when he gets no therapies or supports but could be and should be. And then this facility turns around and complains because he isn't making improvements fast enough!!!!! GAD!!! Lord and Lady SAVE me from this madness!!! And he hasn't even entered public school yet.
Thank goodness for the rest of his supports. He loves his "appointments" and his "preschool". His speech therapy, occupational therapy and the 2 afternoons a week he is in a REAL developmental preschool are his favorite times of the week. And they all say he is making progress, just some areas are slower than others. I talked to Janet the service coordinator this morning and she is getting the physical therapy evaluation set up today. Sandy, his OT says that he doesn't have much strength in his hands and that he may have some muscle tone and sensory issues. We will see what comes out of that. In the meantime she suggested more playing with Playdough to see if we can build up some strength in his hands. I need to call Sandy, actually, to see about getting a sensory diet set up for Ian that can carry over to his other venues. *sigh* I don't know what they are paying Janet for either.
Ian and I were writing in his talk time book again the other night and he decided that he wanted to write in it himself for the first time. It was really great because usually he tells the story and I write it down. He HATES to write because he can't hold the pencil the "right" way. One of the more annoying facets of AS. But he asked to so, of course, I let him. He did pretty well, considering and I did some hand over hand stuff with him to help him along. Then later when he was telling a story, and he was trying to describe something to me, I asked him to draw it and he did!!! Very cool stuff.
Aidan is still making progress with the being 2 stuff and I think I am finally getting the hang of the meltdown thing. 9 times out of 10 I can help her out of them now, but it does take my full attention to do it. Poor little thing. Had to wait for me to figure all this stuff out. I really swear there needs to be an instruction book so these kids didn't have to suffer through our trial and error parenting. She is so cute and smart and I just hate to think I might screw her up because I can't figure out what she needs. I mean, that is my job, after all.
I guess that's enough for today. Peace.
posted by Unknown
at 11:19 AM ::
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